Quiet Moments

Thursday, January 11, 2018

Life used to be full of quiet moments. When I started this blog I lived with one roommate, in a quiet condo in Phoenix, and I was often home alone. I had my work, my blog, and my family. And my illness. That was the part of me that fueled my creative writing, I would lay in bed and write in my head, jump out to jot it down, and create a masterpiece the next day. Today life looks different, quiet moments only happen early in the morning before my precious child is awake, or late at night when he is sound asleep. Yesterday a friend who has been with me since the beginning of my new normal, text asking for my blog address for someone who was experiencing pancreatic issues, and I laid in bed and got a much needed renewed desire to share again, even writing this passage in my head, except this time I was too tired to jump out and take notes, so I am winging it!

If you came here on a random google search about hereditary pancreatitis, or like me, searched for people who had recovered from a total pancreatectomy and were thriving, you've come to the right place. I have made this unfulfilled promise a few times in this space, but I am going to start writing again. When I look back at how far this one life has come as a result of doing very hard things, I am so happy I have this blog and these memories. So I am doing it for those looking for hope, but also for myself as a journal of the moments in life.

If you are new here, start here: 

A recap of the 2 years lost in this space:

1.) I made a really cool video for Dr. Grussner. I had wanted to go speak at his conference in person, but NYC was far and I was newly pregnant and nervous, so we had a video made instead.

2.) I survived a crazy pregnancy, one that I wish I had blogged and shared, but was too consumed with it to do much. I will share a post on it later. Yes, it is possible to carry a child after TP-AIT, but it may look different, and every story turns out differently. There are a few of us who have had babies, I am going to ask all of the TP-AIT girls who are moms now to write a little something for the blog, and we can all share our stories for those who might be afraid or about to embark on pregnancy post total pancreatectomy.

3.) I had a BABY, and he is the best person ever. He is our pride and joy and being a mom is everything to me. I used to write a lot here about my desire to be a mom, and my fear that it would not be fulfilled due to my illness. But it was, and it was worth the entire journey here.

4.) I posted this on my social media:
Posting something out of my comfort zone, but figured this would be the best way to reach a lot of people. Wondering if anyone out there on my Facebook has info on surrogacy, is a surrogate, or knows of someone who is a surrogate. If so and you are comfortable sharing, please message me privately. I haven’t blogged in over a year, but soon will share the story of how Mikey came to be, and how we need to proceed in order to expand our family for anyone who is interested! I enjoy sharing my story to try to help people in similar places❤️

👇this guy needs a sibling.
(Update: We found someone AMAZING to help us become parents to our second child, and I am again so thankful for the power of Facebook for reconnecting us about this need and desire, no one is pregnant yet, but we are working on the plans!)

5.) I continue my work as a Mom, Wife, Real Estate Agent, and Type 1 Diabetic.

6.) Aside from hospital stays during my pregnancy, I have not been in the hospital! I have not had any long lasting complications (Except Type 1 Diabetes, but I knew that was a real possibility, and some nausea with meals (manageable)). Life is good, I take 2 medications: Creon and Insulin, a lot less than “regular” people! Thanks for coming along on this journey. I started this blog in 2011, but now blogging is so popular and has changed a bunch, I am out of the loop. Today I fill my free time reading more superficial blogs, mostly about moms and babies, what baby gear is the best for the stage of life my son is in, or what beauty products will CHANGE.YOUR.LIFE. and I get sucked in to the rabbit hole! All in good fun, but I am bringing “The Soup” back.

1 comment:

  1. So glad to see your blogging again. There are so many out there with pancreatitis issues that need to hear the stories. I've made it my goal to try and relay my family story to as many as I can to hopefully get as much knowledge about this disease out there so it's not so unknown.


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